Getting accurate information tailored to your specific situation is an important goal after a diagnosis of early onset dementia. Here are four subjects to consider as soon as possible.
Update legal and financial documents
For peace of mind, and to eliminate future problems, it’s important to update legal and financial documents. Meet with your financial planner, bank, attorney, and accountant to make sure everything is in order. Here are the documents that may require special attention:
- Healthcare power of attorney
- Living will
- Financial power of attorney
- Life insurance
- Paperwork showing the location of investments
- Titles to property
Participate in medical care
Finding a primary care giver that you like and trust is the first step to getting high-quality medical care. They can help you find an Alzheimer’s disease and dementia specialist that will help create a care plan that meets the individual needs of the person diagnosed with early onset dementia.
Of course, it’s important to keep regular appointments will all members of the care team, including specialists like the neuropsychiatrist and neurologist. Also, be sure to ask about seeing a professional at a specialized memory disorder clinic.
While the first days and weeks after an Early Alzheimer’s Disease are often the most difficult, we are fortunate to live in a time when accessing information is relatively easy.
Finding reliable resources you can turn to as questions arise is a critical part of the journey, and will help everyone involved know what to expect as the disease progresses.
While the Internet is a popular resource, it may be difficult to find reliable information on short notice with a Google search. Establishing a few resources that are available locally for a phone call or even an in-person meeting before questions come up is a smart move.
You can find local organizations affiliated with the Alzheimer’s Foundation of America by calling 1-866-232-8484.
Most communities have a local Alzheimer’s organization. The number to call to locate yours is 1-800-272-3900.
The Eldercare Locator will help you find additional local services. Call 1-800-677-1116 or visit their website at www.eldercare.gov.
Learning more about the disease itself will help you have constructive conversations with doctors and care providers.
Contact the Alzheimer’s Disease Education and Referral (ADEAR) Center at 1-800-438-4380.
The Alzheimer’s Association offers a wealth of information and resources. Call them at 1-800-272-3900 or visit their website at www.alz.org.
Evaluate current and future needs
While day-to-day tasks and self-care may not present an immediate problem, it’s important to understand that at some point, you will need help.
Routine tasks like paying bills, shopping, cooking, house cleaning, pet care, and transportation are the easiest to delegate to family and friends. The more personal needs of the person with early onset dementia are best handled by a Certified Dementia Practitioner or an in-home care expert with experience in this area.
We have three Certified Dementia Practitioners on staff here at Sevens Home Care that are ready to help you create a flexible home care plan to meet your individual needs.
To learn more about our home care services, please contact us.